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What's your diabetes mystery?

Why is diabetes an imperfect science? The last 22 years of my life with diabetes have disproved as much (or more) than it has confirmed in conventional diabetes wisdom. The facts were in the studies - but researchers didn't know what to do with them, at the time. Here's where the mysteries will unfold..

The last year blogging with The Diabetes Blog has been an in your face demonstration of the imperfect science of diabetes. Many undisclosed details of studies from days gone by have proven to be a reason why diabetes has been an imperfect science. Since when has science been imperfect? When you don't complete your homework. Don't get wrong - science has done the homework, but you - the diabetic - have not been privy to every fact found in these studies. Nowadays, there's no excuse. The dog doesn't eat my homework.

It's time these facts made it to the light of day. I am taking my investigative curiosity and hanging a shingle over LoveDiabetes.com - because that's who I am: Allison Love Beatty! Let's buddy-up with the researchers and their homework. It's about time we solved the universal mysteries of diabetes. The facts are available. With combined knowledge, existential and pathological, we can make more of these studies from yesteryear and the days to come.

Someday soon we will see the trend of diabetes reverse - less diagnosis, less complications, and reduced costs. I've got Internet access, unlimited long-distance, and plenty of time. The fun is just getting started! This is my invitation to you - what's your diabetes mystery? Leave me a comment on LoveDiabetes.com so I know what's on your mind. Together we will prove there is no such a thing as an imperfect science.

Love always,
Allie B

The specials tonight are fulminant and non- fulminant

A type 1 diabetic mystery is why do some Type 1s get complications and others seem to never get them? A massive Japanese study of Type 1 diabetics found that those with fulminant diabetes developed complications much faster and more severely than those with non-fulminant diabetes.

The difference between fulminant and non-fulminant is the speed and intensity at which the disease develops. Fulminant Type 1 diabetes typically develops suddenly with near total loss of beta cell function. This type of diabetes is confirmed with testing c-peptide levels. Non-fulminant type 1 diabetes has residual c-peptide levels that eventually taper to undetectable. Sometimes this is seen through many years of the Honeymoon Period.

This study may be the antithesis of conventional wisdom for preventing complications. Staking all hopes on blood sugar control is heavily optimistic. Yes controlling blood sugar does lessen the workload for existing beta cells, and thus extends the lifespan of each beta cell. Research suggests that c-peptide offers protection to beta cells, both from apoptosis (cell death) and encourages new cell growth. This new cell growth applies to beta cells and other cells of the body that endure long-term Type 1 diabetes complications.

Diabetics are instructed that maintaining normal blood sugars is the Holy Grail of preventing long-term complications. Yes and no. The truth is controlling your blood sugar will not allow complications of Type 1 diabetes to develop as quickly, presuming you still had some level of beta cell function upon diagnosis (i.e., c-peptide). That doesn't sound like a reward as much as it does a delayed punishment. I'd like c-peptide with my insulin, please. It's off the à la carte menu? That's fine - serve it up! I want to thank Klausen for bringing this study to my attention.

Should you seek a dietician over a doctor?

Thomas Smith began reviewing scientific literature after conventional medicine failed him in controlling diabetes. Smith found research that shows dietary toxins impair cell membrane function. These toxins include trans fatty acids and refined sugars. Cells begin to have trouble absorbing nutrients, and the blood sugar rises. Over time, this results in chronic elevated blood and urine sugar levels. Sounds like a growing epidemic, doesn't it?

This damage to cell membranes, caused by a poor diet, can be repaired. The diabetic syndrome can be cured by eliminating all processed fats and oils. The protocol calls for supplementing high-dose Omega-3 fatty acids. This protocol normalizes blood sugars because the body is continuously repairing cell membranes by using the fats and oils available in the diet. One caution: the speed of recovery is related to the length of the illness. Some Type 2 diabetics may require up to one year for dramatic reductions in blood sugar.

A gaping hole exists between conventional medicine and diet. Conventional medicine claims that the cause of Type 2 diabetes is unknown. Medical doctors, as practitioners of conventional medicine, are not trained to explain how it happened. They treat symptoms with medicine. The business of medicine is medicine. The business of diabetes would be devasted if the cure was as simple as diet. The explanation Thomas Smith provides in his empirical studies is fascinating and I encourage anybody with competing or supporting evidence to open the debate.

Why don't insurance companies insure diabetic kids?

Ed Hinerman, a life insurance specialist with the Hinerman Group, was posed an interesting challenge recently. For years he has successfully found affordable life insurance for many adults with type 1 diabetes, but he had never been asked about life insurance for children with Type 1 diabetes until now.

After speaking with underwriters in the top 40 or so companies, he found a discernible lack of interest due to lack of data. Companies would say that they couldn't consider someone with type 1 diabetes until they were either age 15 or age 20. A peer in the industry told Ed the knee jerk reaction was because insurance companies haven't done mortality studies on children. They simply don't have any data upon which to base the pricing for products. Uh oh!! That coupled with the fact that there really isn't any financial incentive for them to study and create products for a relatively small market that would produce relatively low premium, kind of sets the tone. Well, now the war has been defined and the battles are becoming clearer.

When Ed contacted the ADA for assistance in this matter - hold your breath (it's a shocker!) - they turned a cold shoulder on a diabetic's need. What if the diabetic's parents were doing what so many families do - and trying to buy a whole life policy to help pay for their kids college someday? It's really not fair! Here's where fair begins -- Ed asked me to gather some facts it will take to get the insurance companies attention. Does anybody have any idea of the mortality rate of children after being diagnosed with type 1 diabetes?

Bottom line. Life insurance companies make big money and for them to cut and run from children just because it might not make them more big bucks, or because they really haven't done their homework and aren't interested in doing it, isn't acceptable. Game on! I hope we can make a good showing, at the very least - hit one out of the park for the fans. Thanks for inviting me to play, Ed!

Dr. Bernstein answers your questions on September 19th

Dr. Bernstein, a world leading authority in diabetes, is hosting a live internet broadcasts to answer your questions on diabetes. Diabetes 911 is setup to stop the complications of diabetes before it's an emergency. Here's a link to the page where you can submit your questions, to be answered on his next broadcast -- September 19, 2007.

Just a heads-up for The Diabetes Blog reading community - AOL has announced they will be retiring The Diabetes Blog on September 14, 2007. So this is a preemptive blog to get your calendar out, send yourself a reminder email titled: OPEN ON SEPTEMBER 19th!!!!

This will not be my last blog shared with you, all mighty readers of the blogosphere. I'm working to get my proverbial welcome mat in place to continue unfolding the mysteries of diabetes on LoveDiabetes.com. More to come...

The true gifts in life come in the form of advice

My recent blog on interlopers offering advice about controlling diabetes upset a good friend of mine. He asked a question that gave me one of those What if...dream sequences. The reality check warrants a new blog.

He asked -- what if an interloper talked your doctor into reconsidering the use of natural animal insulins because they read the research and figured out that it was the better choice? Would you still think interlopers have no value in diabetes control?

Touché` - you sunk my battleship. I had to confer with a fellow diabetes OC blogger to get the he said / she said feedback. She made a very good point, too. In her words, there is a special group of non-diabetics who have an acute understanding of the disease, and who may have a somewhat intuitive understanding of how it works, but most of the time there is a silent acknowledgement that their opinion can at any given time be dismissed in favor of the diabetics'. Words of wisdom typed from the sorceress of Lemonade Life.

Today's lesson for Allie: listen without prejudice. Learn from all who are willing to share their experiences. Prosperity in life comes from the gifts we share with each other. My friends have shared valuable insight to teach me how to gain from every experience in life. I now see that the advice others have to share is the gift we have yet to receive. Denying the gift before we ever receive it is ungrateful. Graciously humbled - Allie B

Nevada County has low rate of diabetes

UCLA researchers report Nevada County, California residents have the lowest rate of diabetes in the state -- 2.6 percent. That's about one-third the state-wide average (6.8 percent), and slightly less than one-quarter the prevalence of diabetes in Imperial County (11.2 percent).

Take a few guesses why Nevada County's rate of diabetes is so much lower than Imperial County, and well under the national average of 7 percent. Do families eat less processed food around the dinner table? More jogging trails? Better health insurance coverage? Researcher Theresa Hastert states, "There is no one thing, but higher income is associated with better foods and exercise."

Hastert explained Nevada County is mostly white, affluent, educated and insured. Imperial County has a large population of Latinos and migrant farm workers. Nevada County's numbers support general findings that minorities without affordable, continuous health care are more prone to the disease. Who's got time for the dinner table -- Hastert openly speculates eating more junk food may be a consequence of dodging between three jobs just to get by. Also, Nevada County is a beautiful area -- she wonders if environmental factors play a role.

Is diabetes a socio-economic disease? If so, we're in trouble. The gap is widening between our nation's haves and have nots, and large concentrations of poor minorities may explain the disproportionate rates of diabetes from county to county. Read more in The Union.

How many diabetics does it take to screw in a lightbulb?

Ok, sounds like a joke - but seriously, TuDiabetes is growing like gangbusters! Meredith Cummings wrote a great article on TuDiabetes and its explosive growth! The online community for people touched by diabetes, is growing at a rate of 10% per week. Way to go, Manny!

And why shouldn't we all plant a flag in this real estate? TuDiabetes offers nonstop support through conversations, debates, mysteries and revelations - all amounting to some degree of resolve. TuDiabetes is a great place to remind you that we're not alone in this dark tunnel. Need some light? Ask and you shall receive. And, by the way - you can get the answer to the lightbulb question by signing in and friending Meredith Cummings.

I logged in today and saw a great question. A member named Cody asks if others are annoyed when people who don't know what it's like to be diabetic try to offer advice. The group of interlopers is frankly growing like a virus. I define the interlopers as people who feel they know the world of diabetes without having landed on the tarmac! It's easy to study the playbook. It's a whole different ballgame to get your butt on the field. Good luck with college, Cody!

Reporting drug side effects - One click away!

A recent study found that 87% of patients who experienced an adverse symptom from a prescribed drug spoke to their doctor. However less than half of the doctors went through with filing the adverse event paperwork to notify the drug manufacturer. Why is this?

The research was published in the latest issue of Drug Safety. Doctors dismissed patients' complaints, and told them their symptoms were not connected to use of the drug. One doctor commented that the time it takes to complete the adverse event drug paperwork is time-consuming, and often not worth it unless it is life threatening. Would Hippocrates have accepted that answer? Please review your Hippocratic Oath, doc.

Your doctor is too busy to file the necessary paperwork to notify the FDA a drug is potentially harmful. What is a patient to do? Good question and here's an answer! If you experienced any adverse side effects from the use of a prescription drug, please let the FDA know. Click BEGIN and bring this monkey business to an end!

Bicycling to bring a cure closer

In two weeks, Bernard Farrell will be riding in the Bike the Miles annual fundraiser to support Dr. Faustman's research to cure Type 1 diabetes. His participation is especially intrinsic because it is one day away from his 35th anniversary of becoming a Type 1 diabetic.

Bernard plans to raise $10,000 for Dr. Faustman's research. Last year he raised $7,500. The entire event raised a whopping $301,000! All of this funding is going toward the human trials to cure Type 1 diabetes. After discovering that the insulin-producing islet cells of the pancreas are capable of regeneration, Dr. Faustman now needs to test her treatment, already known to be safe in humans, to see if the effects are as positive as they were in the animal model.

It goes without say that this is terribly important for Bernard as much as it is for every man, woman and child touched by Type 1 diabetes. Bike the Miles is an annual event that was started by Susan Root and Jacqueline Fusco in 2004. Both, Susan and Jacqueline, have children who are Type 1 diabetics. Please visit Bernard's site to support his ride and the drive to cure Type 1 diabetes!

Passing the VO2 max test

Jennifer Ordoñez, a Newsweek journalist who is also a Type 1 diabetic, reported on her experience at a triathlon training camp geared for diabetics. After reading her report, I was curious as to why hypoglycemia would cause a diabetic to fail the VO2 max test.

Nobody likes failing tests - especially when it comes to something as important as VO2 max. VO2 max is the maximum amount of oxygen a person uses while exercising at their limit for one minute. If you are in shape, your muscles will use a lot of oxygen to create energy. The prime source of energy for the body comes from blood sugar. When Jennifer took her VO2 test her blood sugar was falling and she failed. Apparently when blood sugar is falling the body puts itself into energy lockdown which compromises even conditioned athletes VO2 max.

Hypoglycemia causes muscles to fatigue quicker. Muscle fatigue is the result of inadequate oxygen availability. Prevention of hypoglycemia is one of the major objectives of adequate blood sugar when you are about to work out. By maintaining optimal blood sugar, you can assure a better level of exercise performance. I know better than to tell you what to do. But as a friendly reminder: make sure you've fueled up adequately before you hit the gym or the open road to work on your VO2 max.

Parenting: your kids are ok, but you have diabetes

Browsing diabetes-related books on Amazon recently, I came across this one: When You're a Parent with Diabetes: a real life guide to staying healthy while raising a family by Kathryn Gregorio Palmer. It caught my eye because 1.) it got very favorable reader reviews and 2.) it addresses a topic that is usually neglected - being a good parent when it's you with diabetes. When You're a Parent was published in September 2006 by Healthy Living Books.

Interesting, that. I mean, there are tons of resources out there about raising children with diabetes and keeping them healthy. This book addresses the needs of parents with diabetes who want to raise healthy happy children, but also have special health needs of their own to remember.

Top 100 Amazon reviewer Manny Hernandez has posted a review to the site and also this site, praising the book. Manny's a good authority, by the way: he has type 1 diabetes and has his own sites including, TuDiabetes and a blog AskManny. Busy!! According to Hernandez, Palmer is informative but never condescending, guiding parents through anecdotes on her own and others' experiences. Palmer covers the gamut from pregnancy to raising teens, adoption, and dealing with depression, diabetes complications, and communicating with your kids about your condition. Sounds like a good resource.

Glaxo touts diabetes wellness plan for employees

Pharmaceutical giant GlaxoSmithKline has announced an initiative designed to improve the health of employees with diabetes. Yes, the company's head honchos decided they would take the bull by the horns: if employees have difficulty taking care of their health, they determined to find out why and correct the problem. Result: an internal analysis of healthcare spending within GSK.

Turns out diabetes was one of the biggest problems for Glaxo employees. Glaxo's number-crunchers found the company spends more on diabetes medications, but less on medical care, than the national average. GSK's report states the company spent a total of $26.2 million on diabetes treatment for employees in 2005. Glaxo has now launched what it describes as a multilateral plan to address the needs of employees with diabetes. Leading the charge: a patient education campaign ("Know Your Numbers") and a physician intervention program.

Says Glaxo's US benefits chief, Michael Killian, "As a nation, we are seeing our healthcare costs soar and patients' health decline due to chronic diseases such as diabetes. GSK faces these same challenges and is prepared to meet them." Translation: prevention, prevention, prevention.

Glaxo figures there is nothing to lose, but lots to gain. Healthcare plans for employees already cost a bundle. By targeting the health issues that are hurting employees the most, the company can give those employees a better life and save a lotta money. In addition to making the results of its internal analysis available to the general public, Glaxo has invited other employers to utilize this same approach.

CNN coverage of diabulemia is bananas!

I'm outraged at the coverage CNN provided on diabulemia. They accuse diabetics who suffer with the condition of doing the wrong thing. CNN neglected to address the cause of diabulemia. The drug all insulin dependent diabetics must use is a synthetic hormone that has been genetically modified. It is nothing like human insulin or any natural vertebrate insulin, for that matter.

The fact that 1 in 3 diabetics choose to take less insulin is not because they wish to eat more food. It is a reaction provoked by an inadequate and dangerous genetically modified drug. The reason a diabetic would take less insulin is to avoid experiencing the unnatural side effects the insulin is causing. CNN sensationalized diabulemia and put a damaging veneer on the victims without fully researching the facts. Genetically modified insulin does not penetrate the blood-brain barrier like natural human insulin. Genetically modified insulin distorts hormone responses to hunger. Genetically modified insulin does not protect diabetics from entering ketoacidosis when their blood sugar becomes too high. An inadequate drug causes diabulemia. Accuse the drug manufacturers of making the wrong choice. Or is that biting the hand that feeds you?

Make it right, CNN. Mass media should be the defenders of righteousness, not the accomplices to Big Pharma. Do a study comparing human insulin (natural vertebrate insulin) and genetically modified insulin. The comparison should include: penetration zones of the body, hormonal reactions stimulating and suppressing hunger, amino acids, c-peptide, lipophilic and hydrophilic nature, and pH values. The difference in natural human insulin and Lantus pH is remarkable: 7.5 to 4.0. How similar is that? CNN you've slipped on the peel and missed the facts. Now perform your due diligence to help make it right. I ask every insulin dependent diabetic to email CNN and ask them to put the facts on the line. Link to this blog so they have an idea of where to start. Thank you!

Elevated pregnancy blood sugars linked to obesity in offspring

A new study by Kaiser Permanente's Center for Health Research carries both good news and bad news. Bad news first -- research of 9,439 mother-child pairs shows maternal blood sugar is tied to a future risk of obesity in offpsring. Pregnant women with above-normal blood sugar levels were twice as likely to have overweight kids. Across all racial and ethnic groups, the higher the mother's blood sugar during pregnancy, the greater the chance her offspring would develop obesity by 5 to 7 years of age.

Now if you're pregnant and you've been diagnosed with high blood sugar, take a deep breath. The good news is the risk of childhood obesity is reversible if elevated sugars are treated through diet, exercise and insulin (if required). At particular risk are women with sugar levels higher than normal, but not high enough to be deemed gestational diabetes. They were more likely to have obese children than women treated for gestational diabetes or those with normal sugars.

Borderline blood sugars are nothing to ignore. I shared in a previous post that moderately elevated glucose during pregnancy is associated with other problems such as cesarean section and heavier babies. Gestational diabetes criteria may widen. Also, Deanna reported earlier this month that gestational diabetes is linked to pancreatic cancer.

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